My name is Carly and welcome to my site! The purpose of this site / online diary is for me to have somewhere to post my ideas, point of view and (most importantly) recipes!
In Spring 2015 I started to show symptoms of an autoimmune disease, although this would not be diagnosed for a further 18 months, I went from being a runner and very keen cyclist to not being able to get out of my bed without being in eye watering pain. I have rheumatoid arthritis, What? In my mid 20’s, diagnosed with arthritis, how is that possible!?!? To say it bummed me out is a bit of an understatement. When I set my feet on the floor each morning I would get shooting pain up my legs, I had a severely swollen leg knee, my spine ached and throbbed, my left elbow would also swell and I would be unable to straighten it. Doctors didn’t know what was going on, “take some ibuprofen and rest up” *eyeroll*. In the 18 months I had symptoms with no diagnosis I was constantly frustrated. After the first few months I realised I wasn’t getting any answers anytime soon so I did the only ting I could, I carried on living. I got pretty good on crutches and I found the pain and swelling would come and go, everywhere except my knee. Fast forward to Autumn 2016 and I asked for a referral to a clinic that specialised in inflammatory disease. I walked out an hour later with a lifetime diagnoses of rheumatoid arthritis and a future of being dependant on drugs for my body to function properly.
**The following medication I am about to mention works perfectly well for some people and they are able to live a happy , comfortable life!**
I was firstly put on Sulphasalazine, it gave me an unsettled stomach and I would wake up in the middle of the night freezing cold or boiling hot and I broke on in a rash over my body.
Secondly I was put on Methotrexate and told I couldn’t have babies whilst on this. This medication made me physically sick and I picked up so many infections that I found I was on antibiotics more than I was not.
I began to do what I could to help myslef at the time, I started doing yoga through YouTube and found there were a lot of movement and stretches I couldn’t do but it did help to reduce the aches in my spine and this helped to make me feel good.
I lost 3 stone. I read that every extra 11lbs puts 4lbs of pressure on your knees. So I downloaded ‘my fitness pal’ and 8 months later I was at a happy weight. I found this helped a lot. I was lighter and therefore taking the pressure of my knees and my confidence began to grow as I was beginning to take control of my body back.
Currently I am on Etanacept. I can have babies on this medication and I have found the side effects minimal. The only issue, I still cant live my life properly. I am still in pain and still suffering with swollen joints.
Update 9.7.18: Due to a recent aggressive flare I have had a full sweep of tests and it looks like I’m moving onto another medication. I’m not sure what it is called at this point, I will get a full break down by the nurse soon. Apparently it will work i a slightly different way to Etanacept but have similar side effects to it. Good and bad news foe me, good as if the Etanecept isn’t working there is no point me being on it. Bad because I have to accumulate my body to another drug, urgh.
Argh, my silly body!
So the next step…what else can I do to help myself? I did the easiest thing I could think of, I watched health documentaries on Netflix. Firstly I watched ‘ Fat, sick and nearly dead’. Holy smokes! The fire in me was lit! I went on a full on documentary binge and before I knew what I was doing I had given up sugar and meat and I have very nearly given up dairy, working on finding a nice cheese substitute, that tastes just as yummy! I am now a human experiment, I want to live a pain free life and I am starting with the main thing I have control over, what I put into my body.
At the moment I am scribbling down recipes and screen shot’ing Pinterest and Instagram ideas, so I have decided to start this blog as somewhere to log in ideas and recipes.
Let the project begin!
“The doctor of the future will give no medication, but will interest his patients in the care of the human frame, diet and in the cause and prevention of disease.” Thomas A Edison
Buckle your seat belts kids, this is going to be a wild ride 🙂